End of Life Care
We can find it difficult to talk openly about death and dying and receiving the news that someone we care for is nearing the end of their life can be difficult and distressing. Help and support is available from a range of sources including those involved in providing care for the person that you care for whether their life ends at home, in a hospital, hospice or care home. It is also important that the needs of the carer is recognised and that appropriate support is available for both the carer and cared for.
Below is information about support and information you can access locally and nationally. You can also contact us to talk about any support we can help you with.
St Joseph’s Hospice cares for and supports people aged over 18 years who have a life-limiting condition which cannot be cured, or who have a terminal illness. In-patient, day hospice, community-based and out-patient services are available to people living in the City of London and the boroughs of Hackney, Tower Hamlets and Newham.
St Joseph’s runs a monthly Carers Coffee Morning which is a social group for Newham residents who care for someone with a life-limiting illness or long-term condition. Drop-in and enjoy free wellbeing activities plus information and advice to support you in your caring role. A member of the Carers FIRST team will be there too.
Find us at Canning Town Community Neighbourhood Centre E16 1EH on the last Monday of each month from 10.30am to 12.30pm.
If you would like to talk to them about making a referral or whether you or someone you know is eligible to receive care here, please contact St Joseph's First Contact team on 0300 30 30 400.
The Newham Marie Curie Overnight Rapid Response Service, in Partnership with St Joseph’s Hospice is an out of hours service set up to avoid unnecessary admissions to hospital for patients at the end of life, whilst ensuring a dignified and peaceful death in a place of their choice. It is for all residents of Newham aged 18yrs and over with a life limiting condition who are deteriorating and nearing end of life where there is no identifiable reversible cause.
Available from 10pm to 8am, the service will have a Registered Nurse and a Health Care Assistant who will be able to provide palliative care across all domains (psychological, physical, emotional, spiritual and social) in the patient’s home in response to a call from either a health care professional, patient or carer.
For more information contact 0771 484 7133 direct 10pm – 8am or via St Joseph’s 24/7 Advice and Support line on 0300 30 30 400 or email firstname.lastname@example.org
The NHS has produced a guide giving information about end of life care which you might find useful to look at www.nhs.uk/conditions/end-of-life-care/
Dying Matters is a coalition of individual and organisational members across England and Wales, which aims to help people talk more openly about dying, death and bereavement, and to make plans for the end of life. Dying Matters and the National Association of Funeral Directors have produced My Funeral Wishes. It's a simple form which lets you create a personal funeral plan that reflects you as an individual. www.dyingmatters.org/page/my-funeral-wishes
Marie Curie who produce a guide to end of life services and also have a telephone support line - 0800 090 2309. Click here for more information.
Macmillan also provides a support line - 0808 808 00 00 8am-8pm and information about end of life support
The Person Being Cared For
There are things you can do to make sure others know which medical treatment(s) you would want to refuse and how you would like to be cared for, should a time come when you cannot make or communicate these decisions yourself. Preparing an advance decision to refuse treatment (often called an advance decision or a ‘living will’) and an advance statement are two things you can do.
Advance Statement gives us an opportunity to us to express anything that is important to us about how we would like to be cared for and where we would prefer to die if we are no longer able to do that ourselves. More information can be found here >>
Advance Decision is a decision that you can make now to refuse a specific type of treatment at some point in the future and will only be used at the time you lose the ability to make your own decisions about your treatment. This decision must be written, signed and witnessed. More information can be found here >>