Michael, aged 14, begun his caring role in 2016, caring for his younger brother Charlie who has ASD and mobility disorders.
Despite his caring role, Michael sees his relationship with his brother as just that, caring for his younger sibling, saying “Charlie is my brother and that's how I see him."
One year later, Michael's mum Gemma was diagnosed with a form of dystonia in 2017, a condition which causes stroke like symptoms. Gemma is now on medication and feels her condition is better managed because of it.
Since his mum's diagnosis Michael has noticed changes to his caring role, having to help out a little more than before with tasks like cleaning up, tidying and helping with the washing. Gemma's functional neurological disorder has meant that Michael helps his mum out as much as he can.
Gemma feels guilty about how her condition affects her sons.
“I feel like a lot of the times I should be looking after them, but a lot of the time instead they’re looking after me.” Said Gemma.
Due to his brother's condition, Michael says there are some days where he tries to stay out of Charlie's way completely, staying in his room for the day. Michael says this is normal and he's used to it so it doesn't bother him, and no matter what Charlie is his brother.
Charlie also mentioned that, "It's hard sometimes", with his mum's condition but the three of them are close and that they all love one another.
Talking to us about the support Carers First offer, Michael, Charlie and Gemma have said the activities Carers First do are really good. The groups and events are a break from their day-to-day caring roles, and allows the boys to be with kids their own age, socialising with people in similar situations who understand them.
Gemma mentions that it can be difficult at school because teachers may not always understand the extra stress young carers are under and how much young carers are doing at home to help their loved ones.
Gemma tells us, “I feel very grateful that I have the help and they are always there for me.”
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